What goes up, must come down.

"Was Cody okay today?  I'm only asking because Dennis was wondering," said my sister on Father's Day.

I always laugh and internal, incredulous laugh.  "No," I answered.  "He's not okay.  He has bipolar disorder, remember?"

"Well, but is he OK?" she pressed.

This Mother's Day, 2018, was probably the worst Mother's day to date.  I feel like I take on a lot of responsibility and I'm happy to do it and try my best not to complain for 364 days a year.  I work 12 hour days and then come home, eat dinner, and do the dishes that were left in the sink I guess for me to clean.   On my days off I clean the house, do the laundry, and try my best to make it so we don't live in a pig sty. To be honest, my house makes me sick.  I was fine with having this old ranch style house when we first were married; but now I work my butt off for people who all have bigger and nicer houses than me.  It's stupid really.  Eckhard Tolle would tell us it's "Identification with Form," so in my pity-party moments, I remind myself of that.  Then I think of Oprah.  She once said she knew she had made it when she would open a linen closet that was full of linens from top to bottom.

A three-story house is my linen closet.  Isn't that silly?

Anyway, this Mother's Day found Cody so manic he was probably almost hospitalized.  I was blamed for not planning enough for having people over (even though I told him two weeks in advance AND what the menu was).  I was yelled at for not sending a text of menu items (that I sent).  I was yelled at for his lack of time to plan (when I was at work all day).  When Mother's Day Eve fell on my house, I actually told Cody what I wanted for Mother's Day was for him just not to be there.  I meant it sincerely.  It's one thing to not feel appreciated.  It's quite the other to be verbally and emotionally abused on that day.

All in all, Cody did manage to pull of a decent Mother's Day.  Despite being manic as shit, he was super remorseful and did his best to grill and make me feel appreciated.  He was a great host, talkative, funny, and full of energy.  He entertained the guests, and though I appreciated the effort,  bipolar won this Mother's Day.  I know Cody didn't want bipolar to win either, but it did and that's just the way life goes.  He didn't ask for bipolar either.  It wasn't his fault.

Fast forward a little over a month to Father's Day and I found it hard to imagine that it was only ONE month ago I thought Cody had a one way ticket to the hospital.  He crashed hard from his mania and was now sleeping in, taking naps, and finding it hard to function.  He was clearly now in a depressive cycle.  On Father's Day he was aloof and withdrawn.  Tied to his phone or isolating away from people and sitting in the backyard, he was completely opposite of the Cody who was present for Mother's Day.  It was no wonder my sister asked if he was okay, but honestly the answer is Cody is never really okay.

I told my sister it was nothing more of "What goes up, must come down."  There is only so long any human can sustain little sleep and superhuman energy.  Bipolar or not, everyone is still a person and so Cody crashed into depression.

So far, it hasn't been the total apathetic and lack of awareness depression that last summer brought. Though he seems to have awareness, motivating himself still seems hard and he loses focus and motivation easily.  He sits in the basement in the dark playing video games or watching movies.  Quite the change from the entire Spring where he never touched the basement and spent every moment talking my ear off and networking with clients.

My mom came over today and asked me how I was.  I told her Cody was approved for disability and it would kick in starting in July.  I have never been happier.  I remember once someone telling me their youngish husband was on disability and I looked at the with pity because I thought it was so sad someone so young had given up.  I don't see Cody as giving up, but he simply cannot function as a 40 hour work horse, so I weeped tears of joy when I was alone.  Finally some respite.  Being the sole provider and bill payer is extremely stressful.  I repeat a mantra to myself daily that I can do hard things.  I am strong, but MAN I hope this helps even a little.

Mother's Day was happy because of YOU TWO, my whole heart.

Family is everything.  The strength of strong women is deep in this family

Ringing in 2018

It is New Year's Day and the year is 2018.  As I toasted Cody last night, I asked him what is resolution was, and his only reply was to "stay healthy."

Bipolar disorder sucks.  I would be lying to say it wasn't my prayer every night and morning.  I write it in church on the prayer dedications, and ask my family to do the same.  The health of my husband, my children's dad, is my top priority.  It is the element in our lives that affects our lives the most; and that is considering we have a child with a significant developmental delay/disability.

There is no doubt in my mind we would not be here without faith in God.  Cody's faith has been shaky, but mind has never been.  I also know we have an army praying for us.  Cody's family is Mormon and mine is Catholic, and all the people who pray for us are in my mind, the sole reason our marriage has made it in spite of a daughter with special needs and my husband with a severe mental disability.

After 2 manic/pyschotic episodes in the past two years, I want to try and stop waiting for the other shoe to drop.  I just want to enjoy the present moment.  Love my husband while he is well.  Enjoy this moment for what it is.  Tomorrow is never guaranteed.  I want to be the best mom to my kids.  I want them to grow up in a home where their parents were together.

This 2018, I pray for a year of wellness. We take for granted so much our  health until we don't have it, and regardless of wealth, career, or social status, our lives our nothing without our health.

Dear Lord I pray that 2018 be a year of health for my family.  For my husband, my daughter, my son, and for myself.  This I pray,

The season of wellness

Today is December 9th, 2017.  What seems like an eternal 7 months ago, you were taken from me and the kids. Bipolar clinched it's grip on you and just like that, you were gone.

First in the hospital and then a medication induced zombie, you have been lost to us.  I told many people I lived and traveled with a cardboard cutout of you.  Physically present but emotionally absent, we would try to engage you but would be met with apathy.

Finally we found a psychiatrist who adjusted your medication and within days that cardboard cutout of you started to come alive again.  Today you are back.

Looking at you tonight I marveled that you were talking to me, listening to me, responding to me...and laughing! I stared incredulously that the man I married was back.  My mind started to wander.  I started to feel anxious.  I began to pray silently in my head,
"Please stay for awhile.  Don't leave again.  Please, please, please let him stay well and achieve stability again.  Please God, please.

"Why are you acting so weird?” he said and interrupted my train of thought.

Even if I tried to explain it, you'’ll never understand. You’ll never understand how you go away, and you'll never understand that in these moments, or these seasons of wellness, I’m so grateful and so scared at the same time that we will lose you again.

Why am i acting so weird? I don't know how to tell you  I’m so happy I could cry, and so scared this won’t last, and I’m just trying to drink in this moment of wellness and pray to God it doesn't go away again anytime soon.

Thankful, Grateful, Blessed

This Thanksgiving, 2017, I added a frame to my facebook profile picture that said "Thankful,   Grateful, Blessed.

No truer words were EVER spoken. My husband with Bipolar 1 disorder has been depressed/apathetic since his last manic/pyschotic episode last Spring.  To say I have been lonely isa an understatement.  I only remark that I have lived with a card board cutout throughout the entirety of the summer.  My fun loving, life of the party, adventurous husband was nothing but a shell throughout the entire past 5 months.

About a month ago, we went to a new psychiatrist who switched his meds.  Within a week I started to see glimmers of my husband.  A full month out and I can report I have my husband back.  My kids have their father back.  The amount of gratitude coursing through my veins can never be contained within the confines of the written word.  

This Thanksgiving, I cannot help but be grateful for anything other than having my husband back. Mental illness is a terrible disease.  It has the ability to hijack a person you love and keep them hostage, and you have NO control or say.

This Thanksgiving, the picture frame, "Thankful, Grateful, Blessed," meant more than just a nice sentiment. I truly and deeply felt that despite all the difficulties, God was still in our corner. This Thanksgiving, I truly feel thankful, grateful and blessed to live in a time when mental illness can no longer steal the person I love away from me for good. I am grateful and blessed that because of modern medicine, the man I love, the man who is the father to my children, and the man I want to navigate life with can still be here because of modern medicine.  

Happy Thanksgiving!

A reason to stay

Sometimes, is it as though time stands still.  Never a fan of birthdays, it’s ironic I can remember so many of them with you.  I have so many memories of our 20 year friendship.  If I close my eyes, I remember you standing tall and proud in our high-school demanding attention with a tie wrapped around your forehead for spirit week.  In a world where everyone, including myself, just wanted to fit in; you ensured you stood out.  Always pushing on, moving forward and finding

a reason to stay.

We had AP classes together our senior year of high-school.  I was your match when it came to English and writing, but you were my cheat sheet when it came to chemistry and science.  Because of you, high school was fun and full of laughs and adventures; although I didn’t always realize deep inside you were some days searching for

a reason to stay.

We decided to go to the same college and earn our bachelor degrees.  We drove the metropolitan train line and impressed ourselves with our newly found independence and our success at adulthood.  Boyfriends, heartbreaks, clubs and shoulders to cry on, I’m so thankful you always were there and found

a reason to stay.

From college graduates, to newlyweds, to mothers; we shared the joys life had to offer.  Faithfully taking pictures and documenting it for each other, we had moved onto the next stage of life and easily found

a reason to stay.

You had kids before me and I remember being annoyed and maybe slightly jealous of your instant enamor with all things baby and kids.  You would proudly boast and post pictures of your precious and precocious babe, living, seeing, and experiencing life again through new wonderful, true, curious, and wander lust eyes. Once I had my first born, I joined in on the fun and was ever so thankful I could share this time of life of you and that you continued to find

a reason to stay.

Dark days had always come through this 20 year timeline.  Not privy to them all, I think you at times, got better at hiding the intrusive thoughts that would threaten to hijack your mind.  However, I only became more fooled that everything was fine.  A long, two years brought changes and actions I didn’t recognize.  Though I tried to reach out I didn’t know how; and when I did, I was met with venom and backlash.  Confused, I would reach one hand out only to have two slapped back.  I didn’t want to make it worse, but I also didn’t know you were struggling to find

a reason to stay.

After taking you to the hospital and calling your sisters; my concern was met with outrage and I started to feel I was causing you more pain.  Had I known then what I know today about depression, I would have not left you alone because I thought it was what you wanted.  I would have kept annoyingly reaching out because I would have known you were losing yourself and losing sight of

reasons to stay. 

You died by suicide almost a year later. I still remember the exact chair and the exact room I was sitting in, when your sister called me.  You articulate sister, gifted in words as brilliantly as you; was wailing on the other end that you had died.    It was not a human cry.  It was the sound of grief itself manifested in human voice. 

My dear friend, my 6’3’’ Amazonian goddess of a best friend; I wish I would have known the extent of your struggle.  I had no idea you were fighting a battle every day in which you were trying to find

a reason to stay.  

Had I known then all I have learned now, things might have been different.  Save me a seat on the other side. Love you.

 

 

Love you, Love you a lot, Love you Forever

Love you.  Love you a lot.  Love you forever.

It's a phrase that just started one day in my house, and was bestowed upon my children by their father, my husband. Despite my daughter having one of the severest speech disorders (apraxia) and struggling her first 4 years of life to even repeat "I love you," the phrase had become common place and well rehearsed at bedtime.  The kids, MY kids, MY heart, enjoyed saying it to their dad and giggled in glee when he would repeat it back or complete the phrase.  I would smile at their secret dialogue.  I was never included.  This was something special between them and their dad and I was 100% totally okay and happy with it. 

I love words.  I'm a writer.  Words have always made sense, and sometimes, certain words are only saved for someone special.  Words MEAN something and I knew these words symbolized a unique and special bond between my children and their father.

That is, until Depression hit.  Depression.  Such an unwelcome, unwanted, uncontrollable cloud that comes to visit.  Depression is not welcome by anyone, including the one it decides to reside in.  Depression chose my husband as its home this past year.  My husband reminded me the other day no one would "choose this," meaning no one would ever invite depression in.

My husband's eyes went blank and his body merely a shell.  My kids, not understanding depression tried for a couple weeks in vain.  On auto-pilot my husband would say "I love you" and they would eagerly respond,
"Love you a lot" and wait with baited breath for him to finish and say, "love you forever," but Depression stole their dad away. Depression didn't know the secret words.  Those words were lost in a foggy cloud as he would stare right through them or play games on his phone.

Soon after the words were forgotten.  I love you was ever barely spoken.  Hugs stopped being given.  Have you ever hugged a shell?  There isn't much satisfaction or connection.  At times, you may press it to your ears and imagine words and sounds, but in the end; you are left with a hard case and only your imagination.

We found a new doctor for my husband.  He changed the meds.  I waited for two weeks determined not to get my hopes up.  I couldn't handle them being crushed again.  I started to hear something peculiar.  I started to hear a phrase I just slightly remembered.

I love you.  I love you a lot.  I love you forever.

I think my mind dismissed it at first.  I can't hear that.  It's too painful.  I must be hoping so hard to have him back I am imagining my kids saying it again.  They had long forgotten it. 
But then, again.

I love you.  I love you a lot.  I love you forever.

There was this moment, as sure as the moment when I knew I had lost him......I realized I had found him again.  He had found a way to send depression packing and the sweetest words I think I have ever and will ever heard, came from the smiles of my children as they told him goodnight.

I love you.  I love you a lot.  I love you forever.

Goodbye depression. Oh, and I hope that door hits you on the way out.

Two's company, three is lonely: Go away bipolar depression

Depression is not something we have usually dealt with, my husband and I.  Manic bipolar I had all figured out.  This though, is new.

I am lonely.  I am so lonely at times.  He is a shell.  Depression for him is not sadness. 
It is indifference. 
It is apathy. 
It is....

Despondent.

I need to learn more about depression, but I'm not there yet.  Life is busy.  After working all day, the frustration I feel coming home to a house that's destroyed, dishes in the sink, and depression lying on the couch makes every ounce of patience and compassion in me boil over.

Sometimes it feels like I'm a single mom with three kids, one of which is depression. To say it's overwhelming is an understatement.  To say I feel lonely grossly misidentifies the feelings inside of me.  I once heard a song that said the opposite of love is not hate, it's apathy. 

Apathy is absolutely crushing.  Hate can make you cry, but apathy leaves you feeling empty too. 

I remember when my husband was first diagnosed, I read all this advice to not "jump on the bipolar train."  To set boundaries and make sure I don't get sucked into the constant roller coaster of mania and then depression and then back up to mania again.

I'm here to tell you that's impossible.

Boundaries can ensure you don't physically sit down on the roller coaster, but they very rarely work to inhibit all the emotions that come with loving someone who is manic or depressed.

When my husband is manic, my already anxious spirit is in overdrive and I experience panic attacks, heart palpitations, adrenaline rushes from panic at night, and a racing heart beat.

When my husband is depressed, as he is now, I experience intense loneliness.  No one asks me about my day anymore, and worse yet, no one seems to care.  I live in a house with another adult, but the only sounds are kids playing, fighting, or crying.  I crave adult conversation.  When I reach out and ask a question, it's met with a gesture of indifference for depression has no desire to talk.

Sometimes my husband comes out for a brief visit.  My hopes get as high and come as fast as a rocket shooting to space. Depression always has the last laugh though and the rocket explodes mid flight and I'm the only one left picking up the pieces.

Please, please, please go away depression.

Two is company and three is just....lonely.